Showing posts with label A-T. Show all posts
Showing posts with label A-T. Show all posts

Sunday, 31 July 2016

Hard Life - Brad Paisley with Joe Kindregan


A very special friendship led Brad Paisley to record his song, ‘Hard Life.’ The tune was written by Joe Kindregan, a 23-year-old Virginia native who had A-T (ataxia-telangiectasia), a fatal disease that combines symptoms of cystic fibrosis, muscular dystrophy, immune deficiencies and cancer. Joe met Brad back in 2005 at a fundraiser for Team 25, which helps kids facing tremendous health challenges like his. The two sang on stage together at the event and had kept in touch through the years.
“I’ve known Joe for several years and he is one of my favorite people,” says Brad. “His disease is physically debilitating, but obviously creatively and mentally Joe has such tremendous depth. It’s an honor for me to be the person to give voice to his creativity and cause.”
Brad gave all of his artist royalties from U.S. digital single sales of ‘Hard Life’ in the next year to the A-T Children’s Project. A great song for a great cause.
The ‘Hard Life’ lyrics are inspired by not only Joe’s battle with A-T, but also by others with the disease who had shared their stories with him. When the songwriter shared his lyrics with his country superstar friend, they both realized they had something very special. Joe was in Brad’s Nashville studio to watch the recording and producing process, seeing his song come to life. Joe was ‪#‎LivingWithAT‬.

Joe is now ‪#‎ATfree‬. 1988-2015

Wednesday, 6 May 2009

Melbourne - Part 4 - Saturday

When we woke up, we all decided to go for a walk around St Kilda.
We were hoping the markets were on but they weren't.
Everywhere we walked there were cafes or restaurants open but hardly any of the shops.
They didn't open til later.
We walked all the way down to the water front and along the esplanade.

The Palais TheatreLuna ParkI wasn't able to get a clear picture but as we got to Luna Park, a stretch limousine pulled up.
The driver got out and got a red carpet out of the boot.
We started to get a bit excited thinking we were going to see someone famous.
He rolls the carpet out from the rear passenger door, opens the door, we hold our cameras up and ........
Out pops about 10 8yr olds
hahahahahahahaha
It was really cool. They all "struck a pose" as they got out of the limo.

We walked around the shops for a bit and then it was nearly time for our meeting.
We tossed up walking or catching a taxi back.
The taxi won out and glad we caught it cause we would never of made the distance in time :D

The meeting started at 1.00 pm and it was so great to finally meet BrAshA-T members.

Setting up the conference room.

The meeting didn't finish until about 5.00pm.
We went out to dinner with some of the members to the Stoke House.
Again the food was absolutely delicious and the company was brilliant.
I did take some photos of the evening but the restaurant only lit candles for the "saving energy" night or something :D My photos didn't turn out too well.